Advocate
Italian citizens
In Italy, Idiopathic Systemic Capillary Leak Syndrome is not yet officially recognized as a rare disease. All Italian citizens, patient associations, healthcare professionals, scientific societies, and health care or pharmaceutical companies can request the inclusion of Idiopathic Capillary Leak Syndrome in the essential levels of care (LEA). If you also wish to submit the request, follow the Ministry of Health's guidelines by clicking on the icon below. If you need assistance in filling out the application, contact us!