Terms & Conditions

Terms and Conditions of Use

1. Acceptance of Terms

By using this website, you agree to these Terms and Conditions of Use. If you do not agree to these terms, please do not use the website.

2. Changes to Terms

We reserve the right to modify the terms at any time. Any changes will be posted on this page and will take immediate effect. It is the user’s responsibility to periodically review for updates.

3. Purpose and Content of the Website

This website aims to provide medical and scientific information to raise awareness of Idiopathic Systemic Capillary Leak Syndrome (ISCLS) and offer helpful resources for both patients and healthcare professionals.

4. Intellectual Property

All content on this website, including text, images, and logos, is protected by intellectual property rights and is the exclusive property of the website manager, unless otherwise indicated. Reproduction is prohibited without prior written permission.

5. Limitation of Liability

The website does not replace professional medical advice. The information provided is for informational purposes only and does not constitute medical advice. Always consult a qualified physician for health issues.

6. Links to Third-Party Sites

This website may contain links to external sites. We are not responsible for the content or policies of these third-party sites.

Privacy Policy

1. Data Controller

The Data Controller of personal data is Dr. Riccardo Colombo, who can be contacted via email at postmaster@capillaryleak.org

2. Types of Data Collected

This website collects personal data from users only when strictly necessary and in compliance with current regulations. Data may include information provided directly by the user, such as name, email, and any other information shared through contact forms.

3. Purpose of Data Processing

Personal data collected is processed solely to:

• Respond to contact requests
• Send updates and information about the website’s activities, if expressly requested by the user
• Improve the services offered

4. Legal Basis for Data Processing

The data processing is based on the explicit consent of the user for the above purposes and in compliance with the General Data Protection Regulation (GDPR) UE 2016/679, its successive updates and other applicable regulations.

5. Data Retention

Personal data will be retained for the time strictly necessary for the indicated purposes or for the period required by applicable laws.

6. Data Security

We adopt technical and organizational measures to protect personal data from unauthorized access, loss, or destruction. However, no security system is entirely foolproof.

7. User Rights

The user has the right to access, rectify, delete, and restrict the processing of their personal data, as well as to oppose the processing and request data portability. Requests can be sent to postmaster@capillaryleak.org.

8. Changes to the Privacy Policy

We reserve the right to modify this Privacy Policy. Changes will be posted on this page and will take immediate effect.