About Us

The "Luigi Sacco Hospital" in Milan, a university teaching hospital in Northern Italy, is a reference center for ISCLS. Our medical and nurse team take care of patients affected by this clinical condition, offers consulting services for doctors from other centers in Italy and Europe, and conducts experimental research togheter with the University of Milan.

The Medicina Generale ward and Intensive Care Unit have been caring for ISCLS patients since the '90s. Over the years, we have gained expertise not only in managing the acute phases of the disease but also in the long-term management of relapse prevention. We have the largest case series in the world of patients treated at the same center by the same team.

I have been living with Idiopathic Systemic Capillary Leak Syndrome for several years, and at first, it was difficult to understand what was happening to me. The symptoms would come suddenly, with swelling and a drop in blood pressure, and each episode was unpredictable and frightening. Thanks to an accurate diagnosis and the support of specialized doctors, I've learned to recognize the signals from my body and manage the acute phases of the illness as best I can. I know there's no definitive cure, but having a team of professionals by my side and the support of others facing the same condition gives me the strength to face each day with more peace of mind. I hope that research can make progress and that one day, a solution can be found for those of us who live with this rare and mainly unknown syndrome.

AA - Italy