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DEFEAT THE IDIOPATHIC SYSTEMIC CAPILLARY LEAK SYNDROME TOGETHER

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Our mission

To spearhead an international advocacy movement dedicated to raising awareness and education about ISCLS, enhancing access to appropriate treatments, and supporting innovative research, including efforts to find a cure.

Our vision

Ensuring unrestricted access to treatment so that individuals with ISCLS can live free from symptoms and fully enjoy life without limitations.

Our values

Providing professional and empathetic support to help patients understand how to live with ISCLS, and assisting their doctors in delivering the best possible care by involving them in innovative programs

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Memberships

3

Projets

10

Competences
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Advocate

Join our efforts to obtain rare disease recognition for ISCLS from public health authorities.

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Register as a patient or caregiver member 

Join us in building a community to support patients affected by ISCLS.

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Are you a doctor?

Register as a doctor treating ISCLS patients or simply if you would like to receive more information about ISCLS. 

Stay connected with us.

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Support us

Your contribution helps our research on pathophysiology of ISCLS to found more effective therapies for it.


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